Many people experience phantom limb pain — pain in the limb that was amputated. Experts believe that up to 70 percent of all amputees experience this, in many cases temporarily. The psychological strain can be high and there are several theories regarding its cause.
There is no single treatment that helps everyone equally, so we recommend speaking to your doctor or prosthetist to find the best option for you.
Causes
One of the most common explanations is that different brain areas are responsible for different body regions. When a body part is missing and produces no feedback, the brain may interpret this as pain. People with a congenital limb difference rarely experience phantom pain, suggesting a learning effect. Pain memory plays a role too — pain experienced before amputation can influence the development of phantom pain.
Types
Phantom limb pain is very individual. It may be triggered or intensified by certain weather, cold temperatures or emotional stress. It can occur only at certain times, gradually decrease or increase, or always be present. Sufferers often describe pulling, piercing, burning or cramp-like pain.
Therapy options for phantom limb pain
Combining several therapy approaches is recommended for phantom limb pain since there is no standard therapy that helps everyone. Many therapies are long-term and need your active participation. The following methods complement each other:
Mirror therapy
Sitting in front of a mirror, your sound limb is reflected. The phantom limb appears to be there again and can be moved purposefully via the sound side, helping to release it from cramped, painful positions. Lateralisation training with photographs gives comparable results.
Sensorimotor therapy
Massaging the residual limb with various materials stimulates nerves through the skin. Ultrasound, thermal or electrotherapy can also be used.
Wearing a prosthesis or liner
For many people pain is alleviated by wearing a prosthesis or liner. This is partly due to sensory stimulation of the residual limb and partly because the brain receives feedback that the body part is still present.
Pain therapy
A pain therapist is a doctor specialising in the treatment of pain. Your doctor will refer you. Never try to treat yourself with pain medication.
Residual limb pain
Residual limb pain and phantom limb pain are different and are treated differently. A thorough examination is important to determine which type of pain you are experiencing. Medical examinations help clarify whether you have bothersome scar tissue, painful neuromas, inadequate soft tissue coverage or excess soft tissue.
These causes can be treated long term by adapting components or via further surgery. Certain operating techniques help reduce residual limb pain and pain originating from nerves in the residual limb. Where possible, preventive pain therapy should start during surgery or directly after to prevent chronic pain.